It is a multi-system disease that affects mainly the lungs and the digestive system. In the lungs, where the effects are most devastating, a build-up of thick mucus causes severe respiratory problems. Mucus and protein also build up in the digestive tract, making it difficult to digest and absorb nutrients from food.
People living with rare diseases, such as cystic fibrosis, have been waiting too long for access to the life-changing medications they need. It is time to act. Help us do whatever it takes for everyone affected by cystic fibrosis.
Cystic Fibrosis Canada is calling for the creation of a pan-Canadian rare disease strategy, a strategy that is developed and built in collaboration between the federal and provincial governments. We need all governments to work together to build a better system to improve access to drugs for rare diseases.