Heather Coghill’s daughter Reta was diagnosed with Cystic Fibrosis over 23 years ago when things with Cystic Fibrosis diagnoses were very different. But the feelings that arose from the diagnoses of a fatal childhood disease: the anxiety, fear, anger, and uncertainty were all as over-whelming and present as they are today. However, 18 and half years ago — before all of the segregation of cystic fibrosis patients occurred– during clinics, parents and children alike sat in the same small area waiting to move from one professional member of the Cystic Fibrosis team to another and they had a chance to share their thoughts, their feelings, their fears and their questions. Although we know now that segregation is in the best interest for all, Heather recognizes that there is a great amount of comfort and learning to be had in speaking with others who are going through or have gone through the same thing as she did.
Reta turned 23 in December 2018 and Heather wishes to extend her years of experience in dealing with what quickly became an everyday word in her family’s vocabulary. Cystic Fibrosis moves in and takes over and having like-minded conversations definitely assists
with helping to maintain the necessary balance for everyone involved.
Alysia’s daughter, Kaylee, was diagnosed with Cystic Fibrosis on October 12, 2011 at only 11 days old. She remembers clearly the anger and denial that accompanied the diagnosis and the long healing process that followed. With a husband and two older children, Alysia knows first hand the strain that raising child with Cystic Fibrosis puts on a relationship and the effects it can have on the whole family.
“Having a child with Cystic Fibrosis can feel like a constant battle: with the disease, with the stress, with your own doubts and fears. That’s why I think it’s so important for us to connect with other people who truly understand how we are feeling; people who can support us through the hard times and celebrate with us during the good times." CONTACT ALYSIA
A diagnosis of Cystic Fibrosis is scary. Please feel free to connect with one of us with any questions you may have. We have been where you are and we're happy to help.